What will the scale say tomorrow?

Tonight we are preparing for our trip to Tatum's feeding and growth appointment in Omaha tomorrow. When we have these appointments in Omaha it's usually a long day for me and the girls. Every time we go and come home totally exhausted I always say "I don't think I can do that on my own again." But we have made it so far and I don't doubt that can make it tomorrow. This is really an appointment that I am not looking forward to and just hope that the team of doctors are as optimistic as we are. Throughout the appointment we will see a gastrointestinal doctor, dietitian, occupational therapist, psychologist, and a nurse practitioner. During the appointment we stay in one room and all the different doctors take turns coming in to talk with us and see how Tatum has been doing over the last couple months. Then they all meet up and make suggestions as to how to proceed with Tatum's treatment. At the last appointment they decided that Tatum would start on a strict feeding regimen. To our surprise this is what Tatum needed to get her to eat. After many tests, blood work, and scans it was determined Tatum had no medical problem that was preventing her from eating it was all psychological. She was diagnosed as having a food aversion. I know it sounds weird and most people have never heard of it. But, it is very common and the clinic we go to takes 3-4 months to get an appointment at since they see so many cases of eating disorders in children. It was mind boggling to me. Anyone who has never been around a child with a food aversion simple can't understand that they will not eat. We had family members say "Just feed her!" It is so frustrating and makes you feel so hopeless when your child won't eat. It's not just about her not wanting to eat healthy food, she wouldn't even eat junk food! Her typical meal would consist of a couple teaspoons of what ever we were eating and then she would say she was done. She never got sick feeling from being hungry, never said she was hungry, and meal time was a total nightmare. Since implementing the the feeding plan things have totally turned around. She eats three meals a day now and about three times as much at each meal. She still doesn't really like junk food but has started to like Cheetos but not more than 6 or 7 at a time. When the new feeding plan started working almost immediately, it was so exciting. We had tried other things before and after a few days she went back to her old ways so we were also very cautious. Well after several weeks she continued to improve and hasn't turned back since. Sure there are days she won't eat as much and when she is sick or in the hospital she won't eat either. That is where we are running into problems. She has been hospitalized twice in the last month and a half and hasn't been able to maintain her weight because of it. Since being home she is back to eating great but is not gaining the weight back like we would hope for. We haven't had the feeding tube in for over a month now and our fear is that they will want her to have it put back in. If that is what she needs to continue to grow then that is what we will do. Lets just hope that tomorrow we get a good report and her weight is up at the appointment. At home it fluctuates a lot so it's hard to say what the scale will say tomorrow.