Today was a great day as Tatum is up and walking again! She does still have a limp and seems to keep her left leg straight when walking but is getting around and trying to keep up with Keely. When the pain medicine wears off you can tell because she holds onto stuff to help her get around where she wants to go. It seems she is finally getting back to her self again. Last night I was a little worried about her weight again. I knew she had lost some because her pants wouldn't stay up very good. Well when I finally got the nerve to put her on the scale she was down to 22.6lbs and she has been around 24-25 since having the feeding tube out. I was sick to my stomach and so worried she would have to have the feeding tube put back in. I just felt like I didn't want to tell anyone and hope that she can gain back some weight very quickly. We have to call in weekly to the feeding and growth team we see with Tatum's weight and since it has been staying between 24-25lbs they haven't been too concerned. Tonight we weighed her again and she was up to 23.6lbs so that was a relief to see. She ate like a horse today and I also have been adding real butter to any food I can to help add calories and it must have helped. We will have an appointment next week with the feeding and growth team to see how they think she is doing. We are hoping she eats very well all week and is back up to an acceptable weight by our appointment. Tatum's food aversion seems to be much better but she still will try anything to get our attention on anything other than feeding her. It seems we get her to gain some weight and then she gets sick with something and then loses what she gains and has become a vicious cycle over the last couple months. Also, we aren't suppose to let her drink a lot so she will eat but on the other hand she has to stay hydrated so she doesn't have a pain crisis. Its all become very frustrating and we hope it will all get better soon. All day today when Tatum would walk to me or I would look at her across the room walking she would say "look mom I am walking!" It was just as exciting for me as it was to her. Needless to say we are all ecstatic that she is back to walking on her own and hope the last of her symptoms will be gone in no time.