Long night

Just wanting to update everyone on our oldest daughter Tatum. She has sickle cell disease and had her very first pain crisis last month. We felt very fortunate that this was the first we had seen of the sickle cell. But last night Tatum started complaining of her stomach hurting and it progressed into her screaming in pain for about two hours. We decided to take her into the ER to see what was going on. Well after some time waiting Tatum started complaining about her hands and legs hurting and I knew that the stomach pain must be related to the sickle cell. After labs, x-rays, and and ultrasound was done they determined it was in fact a pain crisis and she was treated with morphine and a bolus of IV fluids. After talking to the doctor we decided we would come home and try to manage the pain at home. She did finally sleep this morning a couple hours and woke still in some pain but nothing we can't handle. She is getting Tylenol with codeine and ibuprofen through out the day and until the pain continues. If he gets where we can't control it with those meds we will be admitted to the hospital to be put back on the morphine as it seems to do the best at controlling the pain. There is nothing we can do to make the red blood cells to stop sickling so we just have to keep the fluids up and pain medication going and that is about it to the treatment. It is so hard seeing her in so much pain and not be able to make it all better. Last time we were in the hospital with this all she could say was "kiss it". That was heart breaking to not be able to make it all better. Both girls are resting right now so hopefully I can get a little rest too. I'll keep you updated and hope the day only gets better.