Still no answers

Today we took Tatum to the doctor because she still will not walk. Other than the pain she is in when she is trying to stand she doesn't seem to have any. She is now only taking the ibuprofen and hasn't needed the narcotics since yesterday afternoon. We did find out that Tatum has or had Parvovirus B19 which is also called Fifths disease sometimes. When we were in the hospital the doctors were suspicious that she may have this since she just had a pain crisis not even a month ago and didn't expect her to have another one so soon. They did the blood work for this test last week but it has to be sent away to be tested and the results just came back today. They are thinking that she got the Parvovirus B19 first and it caused her to have another sickle cell pain crisis. The Parvovirus B19 can cause a lot of problems for someone with a compromised immune system or blood disorders like Tatum has. We are told that the Parvovirus B19 makes your bone marrow quit working and she will now have to have blood drawn every other week for 6 weeks to make sure her marrow continues to improve. The blood work done today did show improvement from when we left the hospital but one of the markers was very high making the doctor suspicious. They are also consulting with our hematologist in Omaha since he sees this kind of stuff more often. Tatum will have an MRI on Thursday to see if she has a bone infarct or osteomyelitis. They think one of these may be causing her severe pain in her legs. Both of these are common in people with sickle cell disease. Since Tatum is so young and probably won't sit for this test she will be put under anesthesia. Since it will be an early morning at 6am and a long day we decided it would be best for Keely to go stay a few days at her grandmas. We are going to miss her so much and its going to be a very quite couple days. But, we need to figure out why Tatum can't walk so she can get better and her and her sister can play and fight like sister's again!